by Gunnar E. Christiansen, M.D.
Co-Chairman, FaithNet NAMI
I always listen closely to the introduction to see if
I hear any new information about myself. What defines
us? Are we what we have done, or what we have not
done? Are we what we were, or what we hope to be?
Are we what others think we are? Are we what we do,
or are we the reason that we do something? Are we who
we are in spite of, or because of some one or some
thing? Are we a 'work in progress?' Who are we
anyway?
One thing for sure, if we are afflicted by an illness
or disorder, we are not the defect. Whether we are
black, white or in between, whether we are tall, short
or medium, whether we are shapely or pleasantly plump,
we are all persons. We are all an equal part of God's
creation.
God has allowed mental illness to exist in our world,
but defining someone by the fact that he or she has
developed such a disorder is a creation of man, not
God. Scripture tells us that God created us in his
image. It does not say that he created
'schizophrenics' and 'manic-depressives.' These
unfortunate terms used for descriptive purposes are
marks of stigma that lead to discrimination.
'To make a difference in treatment or favor on a basis
other than individual merit' is one of the definitions
for discrimination given in Webster's dictionary.
Unfortunately this is what is happening more often
than not in our nation and world today.
Those of us in this room appreciate that each of us
has unique talents, regardless of whether or not we
have a mental illness. Unfortunately, however, far
too many of those outside of this room seem oblivious
to this fact.
This lack of understanding leads to a situation in
which everyone loses. Those with a mental illness are
robbed of an opportunity to have an environment, which
encourages their participation, and society is robbed
of benefiting from their talents.
However, I am reluctant to throw too many stones at
others. Prior to my son becoming ill with paranoid
schizophrenia, neither my eyes nor my heart were open.
I did not fully appreciate the challenges faced by
those with a mental illness. I believe I had
sympathy, but my lack of understanding prevented me
from having empathy, which is necessary before a
meaningful response will happen. My lack of action
played a role in the continuation of the stigma of
mental illness.
Should the Faith Community be involved in the fight
against stigma? If so, what role should it play? I
suggest to you that it should play the leading role,
but does it have the will to do so?
The answer to this latter question can be influenced
significantly by us, especially the vast majority of
us who are part of the Faith Community. We are at
least partially responsible for whatever actions and
lack of actions that we attribute to it.
So what do we attempt to do as one person among many?
How do we influence our fellow Christians, Muslims,
Jews, Buddhists, Sikhs or those of other faiths. What
is the first step?
In my advocacy, I find that looking for direction in
scripture is basic to the development of an effective
response. I believe God has a significant message for
us in the Book of Joshua 6: 13 & 23.
'The seven priests carrying the seven trumpets went
forward, marching before the ark of the Lord ...'
'When the trumpets sounded, the people shouted, and at
the sound of the trumpet, when the people gave a loud
shout, the wall collapsed ...'
New International Version
'The Walls Came Tumbling Down'
It is time for us to convince the Faith Community that
it should join us in leading all of society in a
march. It is time for us to shout and blow our horns.
The wall of stigma of mental illness must come down.
For the 90% of us who do not have a mental illness,
the wall is invisible. But those with one of these
disorders can see it clearly.
A proper response by our nation to the challenges
faced by those with a mental illness involves far more
than just what happens in our legislature and in our
medical research laboratories. Even if we are
successful in passing every law that we feel is
indicated and develop what seems to be the best
possible medications, we will still have the
significant challenge of stigma.
Society places a great deal of emphasis on the
importance of giving medication to those with
hallucinations and delusions in order to return them
to reality, but gives little consideration to the
world of stigma and discrimination to which they are
returned. Perhaps rather than having the question,
'Doesn't God care?,' it would be more fitting to have
the question, 'Don't we care?'
Webster's dictionary defines stigma as a mark or brand
indicating shame or discredit. The stigma of mental
illness makes an invisible mark, but it goes much
deeper than any brand with even the hottest of irons.
No one jokes about someone having cancer or any other
illness. Why do we persistently see it happening to
those with a mental illness?
Why is it so rare to see someone with a mental illness
portrayed as a hero and/or recognized for positive
contributions to society in movies, television shows
or novels? Is there really only John Nash who
deserves recognition?
We are faced with a formidable struggle. Our opponent
is ubiquitous. It seems to be everywhere all at the
same time. It is clever. It gets people to expand its
effect without their even realizing that they are
doing it.
It is ingenious. It affects people's ability to make
an accurate assessment of others. As mentioned,
instead of judging another by who they are and what
they are doing, they judge on the basis of what
illness or disability that they might have.
It influences people in such a way that they become
insensitive to the effect that their comments and
actions might have on others. It deceives people into
feeling that they somehow elevate themselves by
belittling others.
It effectively puts glasses on people that distort
their vision. It prevents them from seeing that we
are all created equal and that we all have the right
for the pursuit of happiness.
It utilizes fear to further its cause.
Regardless of how daunting our opponent appears to be,
we have good reason to believe that we can be
victorious. Our opponent is evil and can be defeated.
We are not alone in the battle. We have an ally and
we could not have a better one. With God's help, we
can cause the wall to come tumbling down.
We are also huge in numbers. The Faith Community's
troops are widespread. We can be clever and ingenious
as well.
We can provide glasses for others that will clear
their vision and enable them to see that each person
is considered special by God.
We can defeat unwarranted fear through education.
Attitudes can be changed. Perceptions can be cleared
up.
But to win the battle, we must do more than just talk.
We must march, blow our trumpets and march again.
As we prepare for this battle, as we focus on possible
solutions to our challenge, we must first carefully
assess if we are part of the problem. I believe that
Jesus' admonition to us in Luke 6:41 demands our
attention, 'Why do you look at the speck of sawdust in
your brother's eye and pay no attention to the log in
your own?'
An area that demands our immediate attention is the
problem of silence. I would like to share with you a
portion of a poem that I received from Louise G.
Fisher of Raleigh, North Carolina, which speaks to
this issue.
The Hush of Mental Illness
by: Louise G. Fisher
Hush! Say the families.
We'd be embarrassed for others to know.
Hush! Say the siblings.
We'd rather die than let anyone know.
Hush! Says the minister.
Someone might feel uncomfortable, you know.
Hush! Say the deacons.
We look after the physically sick, you know.
Hush! Say some church members.
I don't want anyone to know about me or my
relatives, you know.
Hush! Say some government leaders.
There's not enough money to go around, you know.
Hush! Says society.
Cause we already don't want to know, you know.
Stigma produces silence. Silence allows stigma to go
on unabated. We do need more than talk to stop
stigma, but it would be a huge step toward its
elimination if the voices of those affected by mental
illness could be heard.
I am not suggesting that it is wrong, if some want to
keep their illness or the illness of a family member a
secret. Often, when they do have the courage to talk
to someone, rather than receiving support they are
shunned. Rather than being understood, they are
misunderstood. Rather than being asked, Ã’What can I
do to help?, they are offered inadequate, simplistic
solutions for extremely complicated problems. Rather
than receiving love, they might lose an opportunity to
develop a close relationship with someone who is
important to them. They might even find themselves
excluded from relating with members of their own
family. The job of a schoolteacher might be put in
jeopardy, if it became known that he or she had
schizophrenia or manic depression.
Parents that would like to advocate concerning the
illness of a son or daughter might be requested by
him or her to not to let it be known that he or she
has one of these disorders.
Even though secrecy is understandable, I urge those
who are affected by mental illness to avoid the
attempt to carry the load alone. The load is too
heavy. It is OK to ask for help. Doing so is not a
sign of weakness. A trusted friend and particularly
one that is a clergy person, as well, can be and
usually is of immense help.
Unfortunately silence does have consequences. When we
do not go to our clergy person, we allow stigma to be
the winner. Our clergy person is not educated by us
and we miss an opportunity for spiritual support.
I am thankful for the advocacy of those that do feel
comfortable in disclosing such personal information to
the general public. Nevertheless, I do not wish to
contribute guilt to someone that desires to remain
silent and already has a heavy burden.
It seems that avoidance by individuals and families to
reveal the existence of mental illness is often
justified, but we as a nation should feel awful about
this apparent necessity.
It is amazing how many people who have a mental
illness or have it in their family sit in lonely
silence until they hear someone like us tell our
story. It may only be privately to us that they
reveal the existence of mental illness in their life,
but it is a start in their releasing this burden and a
significant step in their healing process.
Even though we may be more prone to look at our
inadequacies rather than at our attributes, we must be
careful not to overlook the power of being a role
model. Our witnessing tells those that may be sitting
in silence that they are not alone. They will see
that others have survived. By openly stating the
burden that the existence of mental illness and its
stigma has had on our lives, we assist those in
silence to understand that there is a legitimate
reason for feelings of insecurity in a world that is
not being fair.
Our story is powerful whether we are a family member
or have one of these disorders ourselves. When we
combine it with giving the positive message that there
is no shame in having a mental illness, we demonstrate
that we refuse to be dominated by stigma. Those that
have found stigma to be overwhelming and have sought
refuge in isolation can be strengthened through our
willingness to fight back.
Stigma is not just something that is around us. It is
not just external. It can also penetrate our psyche.
It can be internalized. For those with a mental
illness, it can lead to feelings of inadequacy. Its
effect is similar to what happens to a child who is
constantly berated by parents and/or peers. It is
very difficult to accept the fact that one is OK, if
constantly told that he or she is not. As a result
one will very often end up accepting the opinion of
others as one's own.
Although we can't make stigma and discrimination
suddenly disappear, we can help those with a mental
illness realize that they are so special that their
opinion of themselves need not be altered by the
unjustified attitude of others. We can praise their
accomplishments and provide opportunities for them to
show their capabilities to themselves and others.
Providing them opportunities to serve others is
particularly helpful.
The most powerful antidote for the internal effects of
stigma and discrimination, however, is spiritual
strength. Reinforcement of the conviction that God
loves us and is with us even in our most difficult
times is of utmost importance. Where better to have
this inner strength nurtured than in a place of
worship with those of a common faith.
Elevation of self-esteem and self-confidence
accompanies recognition of one's value in the eyes of
God. These positive attributes will counteract the
power of internalized stigma. They will also
significantly improve the perception of a person by
others and thereby be a step in the reduction of
external stigma, as well.
Spiritual strength will diminish, however, unless it
is constantly nurtured through giving and receiving
loving care in our relationships with others. Thus it
is of major importance that each of us develops a
welcome and spiritually nourishing environment in our
own place of worship for those affected by mental
illness.
Scripture repeatedly tells us that God wants us to
come to him. He wants us in his presence. He wants
us to have a place of refuge. He wants us to have a
sanctuary. He wants us to have peace. He also wants
his voice of love and compassion to be heard and he
wants us to do the talking just as he directed Moses
as it is recorded in Exodus 4: 11 & 12:
'Now go, and I will be with your mouth
and teach you what you are to speak.'
David makes it clear in Psalm 37 that God wants to aid
us in advocating for that which is just.
'Commit your way to the Lord;
trust in him and he will do this:
He will make your righteousness
shine like the dawn,
the justice of your cause like
the noonday sun.'
Who are we? For sure we are all special. First and
foremost we are persons that have a spiritual base
through which God has offered to enter our lives with
love and strength. We are persons that have the
ability to perceive the needs of ourselves and others.
We are persons that are able to respond to these
needs in a helpful manner.
What a wonderful gift it is to be able to give a
helpful response to someone in need. When we combine
the words 'able' and 'response,' however, we see that
there is a 'catch' to this gift. We are responsible.
We are our brother's keeper.
By utilizing the power offered to us by God, we have
the potential to awaken the 'Sleeping Giant,' the
Faith Community. We can do so by picking up our
trumpets, marching, blowing our horns and shouting.
We can be and must be the alarm clock.
Unless we accept this challenge, unless we accept this
opportunity, unless we accept this responsibility, the
Faith Community will undoubtedly go on sleeping and
stigma will continue to flourish. Without the active
involvement of the Faith Community, NAMI may be able
to trim the branches of stigma, but it is extremely
unlikely that we will be able to destroy its roots.
With persistence and prayer, however, I am convinced
that the Faith Community will awaken and join us on
our march. When it does, there will be a loud shout
and the wall of stigma will come down.
Thank you very much.
FaithNet NAMI - Contact Information
NAMI Orange County - FaithNet NAMI
1810 East 17th Street
Santa Ana, CA 92705
NAMI California - FaithNet NAMI
1010 Hurley Way, Suite 195
Sacramento, CA 95825
TEL: (714) 544-8488
FAX: (714) 544-0791
Electronic Mail
Information: info@faithnetnami.org
Webmaster: webmaster@faithnetnami.org
Copyright (c) 1999 ~ 2005 FaithNet NAMI
Date Last Edited: Wednesday, May 25, 2005
Rev. Chet Watson, Past President, NAMI CA
Chair, NAMIWALKSFBAYAREA
Co-Chair, FAITHNET, NAMI CA
Chair, Episcopal Diocesan Commisson on Mental Illness
Concord, CA
Ph. 925-682-7195